Kicking off the week before our trip with per usual; chaos. We leave Saturday and it will take the whole week to get ready. The boys have no less than six therapy appointments between the two of them. I have a foot doctor appointment. We're hoping Brad can get into the ENT so he can HEAR something. That would be a BONUS! And hoping Clark can either be seen by the pediatrician or just get a prescription for an anti-biotic. I saw him last week to discuss the strep titer results and one of his anti-body levels for strep was sky high! Basically meaning he's had strep before...The technical aspects of the whole deal were confusing but basically I'm to call back if I see any more tic-like or repetitive behaviors, as well as any sick-like stuff. He's developed a cough on top of the hacking. So, I was instructed to not pursue medication as it stands, but with the new cough I think I'd like to try a mild penicillin and see what happens. He'll most likely ask us to come in for a strep test.
The usual packing of stuff: I tend to be a light packer and the fact that where we're staying has a washer and dryer should be helpful. The biggest thing will be the food! With the boys being gluten-free and us being adamant about them only eating good things; we've got a lot of cooking to do!
Tomorrow, Clark's summer TSS starts so I've written a list of a few things I'd like her to work on with him over the summer. She is a natural and very committed so I'm looking forward to his progress with her. Tomorrow evening the babysitters we are taking along with us are coming over to stay with all three while Brad and I run a few errands. This will be the first time they'll be with the boys alone so I hope they feel comfortable with the "big job" the following week. Now that I think about it, it will be the first time in ten months we've been alone together without any kids. This brood requires two babysitters and who can afford that? We're SO lucky to have secured such great people willing to travel and tend to them while Brad and I are in sessions learning Monday through Friday. One is a new high school graduate and the other just finished college. They know each other from Sunday School. The high school grad. is Bernie's school OT's daughter. We feel super-confident about our boys being with them and really just hope all have FUN! The resort where we're staying is a ski place in the winter, but there will be plenty of summer-time fun: pools, playground, mini-golf, etc. My in-laws were very generous to donate two time-share condos for everyone so the babysitters will have their own space. I think that's going to be crucial for them to rejuvenate for the next day.
Almost all of the other program participants will be staying on campus at the Autism Treatment Center of America for a relaxing stress-free kidless week and using the evenings and downtime to connect with other parents. I sure hope we find some time to make these connections as they can be invaluable after you leave as a support system. We'll be meeting people from all over the globe; Nepal, Australia, Great Britain, South America, etc. etc. I thought it was important for both Brad and I to attend though, and I couldn't fathom leaving my baby boy especially. It will be a good family trip, but now I'm hoping I don't have to use my lunch time with the breast pump.
The usual packing of stuff: I tend to be a light packer and the fact that where we're staying has a washer and dryer should be helpful. The biggest thing will be the food! With the boys being gluten-free and us being adamant about them only eating good things; we've got a lot of cooking to do!
Tomorrow, Clark's summer TSS starts so I've written a list of a few things I'd like her to work on with him over the summer. She is a natural and very committed so I'm looking forward to his progress with her. Tomorrow evening the babysitters we are taking along with us are coming over to stay with all three while Brad and I run a few errands. This will be the first time they'll be with the boys alone so I hope they feel comfortable with the "big job" the following week. Now that I think about it, it will be the first time in ten months we've been alone together without any kids. This brood requires two babysitters and who can afford that? We're SO lucky to have secured such great people willing to travel and tend to them while Brad and I are in sessions learning Monday through Friday. One is a new high school graduate and the other just finished college. They know each other from Sunday School. The high school grad. is Bernie's school OT's daughter. We feel super-confident about our boys being with them and really just hope all have FUN! The resort where we're staying is a ski place in the winter, but there will be plenty of summer-time fun: pools, playground, mini-golf, etc. My in-laws were very generous to donate two time-share condos for everyone so the babysitters will have their own space. I think that's going to be crucial for them to rejuvenate for the next day.
Almost all of the other program participants will be staying on campus at the Autism Treatment Center of America for a relaxing stress-free kidless week and using the evenings and downtime to connect with other parents. I sure hope we find some time to make these connections as they can be invaluable after you leave as a support system. We'll be meeting people from all over the globe; Nepal, Australia, Great Britain, South America, etc. etc. I thought it was important for both Brad and I to attend though, and I couldn't fathom leaving my baby boy especially. It will be a good family trip, but now I'm hoping I don't have to use my lunch time with the breast pump.
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